PNH

Paroxysmal nocturnal haemoglobinuria

A rare acquired blood condition where red cells break down, causing anaemia, clots and dark urine.

What it is

PNH is caused by a genetic change in a stem cell. It can occur with aplastic anaemia and needs specialist care.

Signs people often notice

•Dark urine in the morning
•Tiredness
•Shortness of breath
•Clots

Who it affects

Rare; can affect adults of any age.

Questions worth asking your clinician

?What treatment suits me?
?How do we monitor clots?
?What follow-up is needed?

This information is general and educational. Always speak to your GP or prescribing clinician before changing medication, starting supplements, or acting on anything you read here.

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